Tiffany Wedekind, 41, lives with progeria, a rare genetic condition that causes accelerated aging. Diagnosed at 20, she is one of the oldest individuals known to have this condition, which typically shortens lifespan significantly.

Progeria, often referred to as “Benjamin Button” syndrome, affects one in 50 million people. While children with progeria rarely live beyond 12 years old, Tiffany’s resilience defies expectations.

Her journey has been marked by challenges. She experiences tooth decay, hair loss, and heart problems, and her weight remains low. However, Tiffany leads an active life, working as a cleaning company director and running a small candle-making business.

Inspired by the loss of her brother, Chad, who passed away from progeria at 39, Tiffany embraces life to the fullest. She enjoys yoga, dancing, socializing with friends, and traveling, despite the constant awareness of her condition.

Dr. Kim McBride, a geneticist who has been treating Tiffany for years, describes her as “a special case.” While progeria typically manifests in early childhood, Tiffany’s diagnosis came later in life. Despite the challenges, Tiffany remains positive and determined. “I don’t consider my case a phenomenon,” she says. “I am who I am, and I live like everyone else.”